Unlocking Hope: A Journey Through Understanding and Supporting Individuals With Rett Syndrome

Gain in-depth knowledge on and strategies for optimizing the care of patients with Rett syndrome, particularly those in the community setting, through a series of Medical Minute modules with accompanying slides, expert-written ClinicalThought commentaries, a podcast, and an interactive case challenge.

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Program Content

Activities

Rett MM1 2024
What Is Rett Syndrome?
Video
Congratulations: You achieved a completion on 04/09/2022

Released: June 11, 2024

Expires: June 10, 2025

Rett MM2 2024
Leveraging the Interdisciplinary Team for Holistic Treatment of Rett Syndrome
Video
Congratulations: You achieved a completion on 04/09/2022

Released: July 17, 2024

Expires: July 16, 2025

Rett MM3 2024
Pharmacologic Treatments for Rett Syndrome
Video
Congratulations: You achieved a completion on 04/09/2022

Released: August 05, 2024

Expires: August 04, 2025

Rett MM4 2024
Caregiver Perspective on the Current State of Rett Syndrome Care
Video
Congratulations: You achieved a completion on 04/09/2022

Released: August 14, 2024

Expires: August 13, 2025

Activities

Rett MM1 2024 DL
What Is Rett Syndrome?
Slideset
Congratulations: You achieved a completion on 04/09/2022

Released: May 30, 2024

Expires: May 29, 2025

Rett MM2 2024 DL
Leveraging the Interdisciplinary Team for Holistic Treatment of Rett Syndrome
Slideset
Congratulations: You achieved a completion on 04/09/2022

Released: July 12, 2024

Expires: July 11, 2025

Rett MM3 2024 DL
Pharmacologic Treatments for Rett Syndrome
Slideset
Congratulations: You achieved a completion on 04/09/2022

Released: August 01, 2024

Expires: July 31, 2025

Rett MM4 2024 DL
Caregiver Perspective on the Current State of Rett Syndrome Care
Slideset
Congratulations: You achieved a completion on 04/09/2022

Released: August 09, 2024

Expires: August 08, 2025

Activities

Rett Interactive Case Challenge
Rett Syndrome Interactive Case Challenge: Recognizing Presentation of a Heterogeneous Disease
Case Challenge
Congratulations: You achieved a completion on 04/09/2022

Released: October 25, 2024

Expires: October 24, 2025

Activities

2024 Rett Podcast
What’s New in the Treatment of Rett Syndrome?
Podcast Episodes
Congratulations: You achieved a completion on 04/09/2022

Released: August 14, 2024

Expires: August 13, 2025

Activities

Rett Syndrome Introduction
Rett Syndrome: From Pathophysiology to Modern Research and Novel Therapies
Clinical Thought
Congratulations: You achieved a completion on 04/09/2022

Released: May 22, 2024

Expires: May 21, 2025

Rett Syndrome Caregiver
The People Behind the Exam Room Door
Clinical Thought
Congratulations: You achieved a completion on 04/09/2022

Released: July 31, 2024

Expires: July 30, 2025

Faculty

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Arthur A. Beisang, MD

Complex Care Pediatrician
Gillette Children’s Specialty Healthcare
Assistant Professor of Pediatrics
University of Minnesota
Minneapolis, Minnesota

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Carrie Black Buchanan, MD

Developmental-Behavioral Pediatrician Greenwood Genetic Center (RETT COE)
Greenville, South Carolina
Assistant Professor
Department of Pediatrics
MUSC Children’s Health
Medical University of South Carolina
Charleston, South Carolina

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David N Lieberman, MD, PhD

Director, Comprehensive Rett Syndrome Clinic
Department of Neurology
Boston Children's Hospital
Boston, Massachusetts

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Eric Marsh, MD, PhD

Clinical Director, Orphan Disease Center
Director (MPI), CHOP/Penn IDDRC
Professor, Departments of Neurology and Pediatrics
Division of Neurology
Children’s Hospital of Philadelphia
Perelman School of Medicine
University of Pennsylvania
Philadelphia, Pennsylvania

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Claire McMurray, PhD

Parent Advocate
Freelance Writer
Lenexa, Kansas

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Paige Nues

Family Empowerment Director
International Rett Syndrome Foundation
Cincinnati, Ohio

Provided by

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Provided by Clinical Care Options, LLC, in partnership with the International Rett Syndrome Foundation (IRSF).

Supporters

Supported by an educational grant from Acadia Pharmaceuticals Inc.

Acadia Pharmaceuticals, Inc.

Partners

International Rett Syndrome Foundation (IRSF)

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