Rett Syndrome Today and Tomorrow: A Podcast Series

Rett syndrome, a rare genetic neurodevelopmental disorder, has a progressive disease course, making early identification and diagnosis imperative for optimal patient outcomes. Although no cure currently exists, there are several options available for supportive care and symptom management, and other interventions—both pharmacologic and nonpharmacologic—are in development. In this series of podcasts and ClinicalThoughts, experts in Rett syndrome shed light on the disease course and the current and emerging management options.

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Program Content

Activities

Understanding Rett Syndrome
What Is Rett Syndrome? An Overview of Disease Characteristics and Genetic Features
Clinical Thought
Congratulations: You achieved a completion on 04/09/2022

Released: December 09, 2022

Living With Rett Syndrome
A Monster in the Night: My Experience With Rett Syndrome
Clinical Thought
Congratulations: You achieved a completion on 04/09/2022

Released: March 24, 2023

Activities

What Is Rett Syndrome?
Rett Syndrome Today and Tomorrow: What Is Rett Syndrome?
Podcast Episodes
Congratulations: You achieved a completion on 04/09/2022

Released: January 18, 2023

Expires: January 17, 2024

Managing Rett Syndrome1
Rett Syndrome Today: Current Options for Symptom Management
Podcast Episodes
Congratulations: You achieved a completion on 04/09/2022

Released: March 02, 2023

Expires: March 01, 2024

Future Options for RTT
Rett Syndrome Tomorrow: Management Options on the Horizon
Podcast Episodes
Congratulations: You achieved a completion on 04/09/2022

Released: March 27, 2023

Expires: March 26, 2024

Faculty

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David N Lieberman, MD, PhD

Director, Comprehensive Rett Syndrome Clinic
Department of Neurology
Boston Children's Hospital
Boston, Massachusetts

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Jeffrey Neul, MD, PhD

Director
Pediatrics
Vanderbilt University Medical Center
Nashville, Tennessee

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Dominique Pichard, MD

Chief Science Officer
International Rett Syndrome Foundation
Cincinnati, Ohio

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Shannon Standridge, DO, MPH

Professor
Division of Neurology
Vinaya Rett Syndrome and Related Spectrum Disorders Clinic
Cincinnati Childrens Hospital Medical Center
Cincinnati, Ohio

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Supporters

This program is supported by an educational grant from

Acadia Pharmaceuticals, Inc.